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Resources

ME/CFS/Long COVID Caregiver Support Groups

If you are a caregiver of a loved one with ME/CFS, Long COVID, or other debilitating chronic illnesses, you may find it helpful to attend a support group.  The two free support groups below are led by fellow caregivers as volunteers with #MEAction and are conducted by video conferencing. You may also join by phone.  

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  • Kim leads a support group focused on partner caregivers that takes place on the first Sunday of each month at 12 p.m. PT / 3 p.m. ET.  While we focus on partner caregiver needs, all caregivers are welcome to join. To be added to the email list, contact Kim at kim.mecfs@gmail.com.
     

  • #MEAction's support group for all caregivers takes place on the third Saturday of each month at 12:30 p.m. PT / 3:30 p.m. ET. To be added to the email list, contact Denise at caregiver@meaction.net.
     

  • For support groups for people with ME/CFS or Long COVID, the American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society has created a list here.

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Educational Resources

 

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ME/CFS Nonprofit Associations

  • #MEAction:  An international organization that is building a global movement to fight for recognition, education, and research so that, one day, all people with ME will have support and access to compassionate and effective care.
     

  • Solve ME: A non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID, and other post-infection diseases.
     

  • American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES): An organization dedicated to serving the needs of patients and caregivers through support, advocacy, and education. 

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  • Massachusetts ME/CFS and FM Association: An organization supporting people living with ME/CFS and their families by connecting them to supportive resources and each other, and by educating and advocating to expand the ME/CFS healthcare and social service infrastructure in Massachusetts. You don't need to be a Massachusetts resident to join.  
     


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