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Join date: May 15, 2023
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Posts (15)
May 19, 2025 ∙ 6 min
Avoiding Caregiver Burnout: Wisdom for the ME and Long COVID Community
I recently helped my husband answer more than 500 questions for a new doctor about his health symptoms. He has myalgic encephalomyelitis...
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Apr 12, 2025 ∙ 5 min
Planning a Family Trip with Chronic Illness and Disability: The Hidden Work and Uncertainties
Stunning cherry blossom trees at a popular park in Tokyo during our last trip several years ago. It’s been a stressful past few months,...
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Mar 19, 2025 ∙ 3 min
Who Cares for the Caregivers?
I’ve been thinking a lot about the tragic news reports of the deaths of Oscar-winning actor Gene Hackman, 95, and his wife and caregiver,...
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